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The STRESS of the Big Apple

February 10, 2012

18 Comments

Introduction: My name is Andrea and I’m 28 from New York City. I’m a photographer/graphic designer/jewelry designer. I love being outside, either taking photos or working out! The New York City Colitis Experience: I was diagnosed with ulcerative colitis in September 2011. I noticed while on vacation over Labor Day, that foods just weren’t agreeing [...]

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49 Year Old With Ulcerative Proctitis

December 22, 2011

6 Comments

I was diagnosed approximately 4 years ago with ulcerative proctitis (my UC is limited to just the distal part of the colon). I was at that time 45 years old. My doc put me on Lialda and Canasa suppositories. These didn’t work and I’ve had to use steroid enemas for flares over the last couple [...]

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Just When Things Were Good, Here We Go Again

December 12, 2011

5 Comments

I don’t think I’m ready for “the” operation yet, and I really don’t wanna try remicade. In my head I feel like prednisones side effects are all I can deal with. Ive tried the others mentioned without pred. and they didn’t do squat but gave me acne and hairloss

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Scary Remicade Experience

December 8, 2011

11 Comments

I really wish I had known how dangerous and experimental these drugs are… while this is very rare, I know I am not the only person on this site that has had a bizarre reaction to these drugs, although from what I understand from the many doctors I have seen, my reaction is one of a kind…

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Help For the Rash and Itch from HUMIRA

November 3, 2011

2 Comments

I’ve had a debilitating intestinal condition enough to get me hospitalized for 15 years. The diagnosis has varied from Ulcerative Colitis to Crohns to IBS to Colitus. The symptoms started after coming back from Bolivia as an exchange student in 1974. The very fact that the diagnosis varied from doctor to doctor and even within [...]

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I’m Crying Because of Colitis, I Don’t Know Where Else to Turn

October 27, 2011

6 Comments

I’ve had ulcerative colitis for four years,since my senior year of high school. I was first given the standard procedure of large doses of prednisone, with the usually dreadful side effects. I especially hated how my armpits were waterfalls of sweat, my hunger uncontrollable, and I puffed up like a blowfish just in time for [...]

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Budisone (Entocort) Withdrawal with Ulcerative Colitis

September 27, 2011

2 Comments

I have Ulcerative Colitis and Crohns. I was diagnosed about 3 years ago. My gastroenterologist doctors had me on Asacol and Budisone (Entocort). While I felt OK most of the time, a recent colonoscopy showed a recurring stricture and significant ulcers and inflammation. Enter AZT. I tolerated it well, so I decided to wean myself [...]

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Taking Prednisone and Getting Married in a Month

August 13, 2011

12 Comments

My Ulcerative Colitis Story: Hi Everyone! This is my first post and wanted to get some helpful advice. I was recently diagnosed with Ulcerative Colitis a couple weeks ago and started Colazal with no improvement. My doctor now wants me to start Prednisone but I am terrified to get the physical side effects. I am [...]

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Good-Bye Imuran

June 16, 2011

6 Comments

Well, unfortunately it turned out to be too good to be true… Imuran initially appeared to be the medication of choice for me. Having run out of options with steroids and experiencing a very rough steroid-rebound flare and a hospital stay, my doctor put me on Imuran. I was fully-aware of the side effects but [...]

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UC Flares Progressing More Rapidly?

February 9, 2011

5 Comments

We have all heard of “fair weather fans.” Well, I guess I am a crappy weather fan of this site. No mistaking, I ABSOLUTELY LOVE this site! I find it EXTREMELY helpful. But hardly ever will you see a posting of mine when all is well in UC land. This is my venting place. (Where [...]

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Psoriasis and Eczema Following Remicade or Humira Use for IBD Patients

January 7, 2011

0 Comments

Dear  Adam, Indeed, these skin manifestations can arise in patients treated with biological therapies. Although they are rare, they may in some cases,  lead to cessation of therapy in patient with refractory dermatological treatment. The best I can suggest you is to see an expert dermatologist who is used to deal with these manifestations and [...]

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