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24 Year Old Seeking Advice About Remicade – Please Help

January 3, 2012

15 Comments

Introduction: My name is Kelli and I am 24 years old. I have been diagnosed with UC since I was 13 years old. I am currently experiencing a flare up and my doctor is wanting to start me on remicade. I have been on asacol since I was diagnosed with Colitis. Any Advice With Remicade? [...]

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Alternatives to Humira / Remicade Colitis Treatment

December 28, 2011

5 Comments

Introduction: Hello. My name is Dan K. and I am 54. I was diagnosed with UC after I had the standard colonoscopy when I turned 50. I am currently struggling to make a decision on a next treatment drug. My Remicade / Humira Dilema: Since being diagnosed, I have tried several drug treatments. I have [...]

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Scary Remicade Experience

December 8, 2011

11 Comments

I really wish I had known how dangerous and experimental these drugs are… while this is very rare, I know I am not the only person on this site that has had a bizarre reaction to these drugs, although from what I understand from the many doctors I have seen, my reaction is one of a kind…

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Me and My Buddy UC

November 29, 2011

3 Comments

Hello all, Me and my UC had our 20th anniversary this year. So we have had long, and most of the time, happy life together. I was 15 when I was diagnosed, although I think I had it for a good while before that. My mother treated my morning toilet trips as some sort of [...]

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Remicade Question (I just had my 4th Infusion)

November 3, 2011

5 Comments

Intro: I was diagnosed with severe UC in June 2011. Remicade seems to be the only thing that really works. Not in remission yet, but hopefully close to it! My Current Question: I’ve been getting Remicade infusions since July 2011. I was going to the bathroom 5-6 times per day after my first infusion. After [...]

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Remicade Reimbursement, Humira Protection Plan, and VSL#3 Info For Ulcerative Colitis

October 19, 2011

1 Comment

Below are some quick links to several different things related to Ulcerative Colitis.  Shelly sent this over to me a while back, and I am only now getting the chance to post it up on the website, so I apologize to everyone here for the delay. As some of you might know already, VSL#3 is [...]

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Insurance Won’t Approve Remicade Every 6 Weeks

October 9, 2011

7 Comments

Update – On Remicade for 9 months now. Working great but not lasting full 8 weeks in between infusions. Blue Shield will not allow me to receive infusions any more than every 8 weeks! My Current Story: I’ve had UC since 2003….been on Remicade since January 2011. Been going great – pretty much symptom free. [...]

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My Remicade Update…Able to Drink a Cup of Coffee! I can’t believe It

October 4, 2011

2 Comments

Hi everyone! ok it has been almost 2 weeks now since 1st Remicade infusion. I splurged and had Starbucks soy latte!  The devil right? not this time, it tasted soooooo good and did not have me running to bathroom, so I have been drinking a small one, just 1 a day for past 5 days [...]

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Remicade (Infliximab) Reviews and Survey For Ulcerative Colitis

October 3, 2011

9 Comments

A 35 Patient Survey about Taking Remicade to Treat Ulcerative Colitis Symptoms Objective: To find out if there are similarities when it comes to taking Remicade (Infliximab) for treating Ulcerative Colitis with respect to effectiveness, side effects, and the decision to continue use of the medication in the future.  The 35 people who took part [...]

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Remicade Update…

October 1, 2011

4 Comments

OK so it has been a full week since first Remicade Infusion. My gut feels good!! More than good! For past 2 days only 1 trip to bathroom a day! Just coincidence? ……who knows, but I’ll take it! Side effects…..still have joint pain, which is slightly better today, not sure why. Could be the Tyleonl [...]

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OK It’s Been 6 Days Since 1st Remicade Infusion…hmm

September 30, 2011

10 Comments

Hi everyone! Hope you are all hanging in there and that today has been a good day for you. THANKS Adam for posting my story! So I have been on the Remicade for 6 days now. So the first couple days I felt tired and no other changes. On the 3rd day I woke up [...]

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