Hi. My name is Aine and I’m from Ireland. Diagnosed with acute IBD about 12 years ago. Im divorced with four adult children and self employed. Definitely blame stress and anxiety for my worst flares. First major flare started just after my marriage broke down. I notice ever since that the minute I feel real anxiety my stomach quite literally clenches tight. I work hard on being calm, take exercise and try to rest. However we cant avoid real life.
Some more about Aine:
My life is generally fun. I work hard, sometimes too long hours, I play golf, as much as I can, I walk and in the Winter I go to the gym and swim a bit. I have two kids working abroad, soon to be three. I visit my daughter in London a couple of times a year and I go to the sun Spain and Portugal twice a year. My joint pains are coming between me and my life at the moment. Im 53 and I feel 90.
Bad joint pains. BM twice daily and fairly normal. Yipee! Headaches from the sulfazine and some nausea but only on it five days. Cant sleep so spend a lot of the day fighting tiredness.
Can I Be Normal?
In the beginning the blood was the scariest thing. I had cramping, too regular BM and total exhaustion, but this fresh blood leaving my body every time I sat on the toilet really got to me. I’m with the same consultant (GI) from day one. He played it down so much after my first scope that I never saw this last 12 years coming. I have had to learn so much myself. Initially Asacolan worked magically for me. So much so that every year I would give it up and be sympton free for quite a while. Then I would become anxious or stressed over something and before Id know it , bang, right into a flare. None of my doctors ever spoke about diet, although I regularly asked. Just this year my doctor sent me to dietician who specialises in The Fodmap plan. No I actually didn’t go, but after reading all your stories I feel I might.
This past years I’ve been particularly bad. I had an ovarectomy, then cracked my shoulder, got pneumonia and of course the most horrendous flare followed.
Tip for UCers. If your system is struggling with pain , flu, or any other illness, you WILL get a flare. At those times you need to rest up and be kind to yourself to try to avoid the flare. I know this now , but I didn’t.
The pain from my cracked shoulder seems to have started general joint pain. The doctors never informed me that thos pain could be connected to my IBD. I had to figure that out for myself.
Ive been through the mill on medications this year and would love to give Adam’s diet a go. I’m a a bit of a wimp there. Never was much good on diets. I weigh 87kgs and have a BMI of 32. So I need the diet but struggle to be good.
I want the joint pain to stop. I want to not be so tired all the time. I want to stop being terrified every time I get anxious or stressed. I want to be normal!
Asacolan was brilliant in the early days
Immuran was horrendous, nausea, sore mouth, sick, headaches.
Sulfazine 1500 mgs per day . Headaches and nausea at the moment. Will it pass? BM best ever since I started.
Hated the enemas, so stopped them.
Mezovant at 2400 mgs fine at 3200 headaches.
Now on 1200 per day
written by Aine L
submitted in the colitis venting area