Adam’s full story of life with UC.
From being very sick and on medications, to figuring out how to live symptom free:
Feeling Crappy to Feeling Happy
I found your help Adam after the sudden loss of my long time doctor and friend. Despite how good everyone thinks Healthcare is in Canada we can wait months to years to see a new doc. Your book came at a crucial time for me as I was feeling lost on what to do next as I really had no one to turn to. I was armed with the meds I had previously been prescribed as well as your book! I have to say after a full month of flare, I am starting to manage with diet, acupuncture, and am off the entocort. Thank you for being the light by reaching out through your book. I found it insightful, and highly entertaining with your stories. I wish you continued health and happiness! We are all in this together, the most important lesson in have learned foom your book! Namaste!
Always great to read others stories. I passed this to my daughter who is now 22. Diagnosed at 19. I hope there is more progress during her lifetime.
Thanks for Sharing
The book was great! I read it within 3 days. I read the book to learn about someone's full experience to gain insight on the journey, the symptoms, medication side effects and the overall affect UC has on the body. I myself do not have UC but my significant other does and it gave me hope that it's possible for him to get into remission. I have not tried the recipes yet but actually plan to this weekend. They look like something I can get him to eat vs. forcing him to eat healthy. Thank you so much for writing this book. As you can see, it's helped thousands, maybe even more with either their personal journey with UC or with their loved ones who support them.
While I was reading this book, I felt like we were just sitting at the table talking. With this disease, there are times you feel like you are the only one with it. I was diagnosed at the age of 67. I have been on a lot of the medications you mentioned in your book. I am still on six pills a day of the asacol 800HD and also the mercaptopur at 1.5 a day. As with the flares the only thing that helps is the prednisone. I am also taking a probiotic. The tired feeling with these drugs is the hardest. I have not incorporated the cook book in yet. Thank you again!
I read the book,it was like looking in th mirror. Sorry to say can't eat any or most of the food you are eating. ( salads, anything green) it's been more then a year this time. Wishing and waiting to be in your way of eating, but other wise it's a story that reminds me and I am sure others of what their life is like. Thanks
Feeling Crappy to Happy
I bought this book for my husband who had been diagnosed with UC about a year and a half ago. He was given Mezavant and it was doing well to keep him in remission until November of '15. He had a flare up and his knee and ankle joints were so bad he was not able to leave the bed. The doctor gave him a strong dose of prednisone a week and a half ago over an eight week period with a slow taper off each week. We have introduced many aspects of the SCD diet and are experimenting with what works and what doesn't. Were not sure yet if the prednisone is what is helping out or a combo of both, but at least I have the knowledge for meal prepping when the meds are done. Very inspiring book and it was like looking through a mirror for my husband with the early symptoms and struggles prior to diagnosis. Love the cook book as well. Thank you.
Thank you so much for sharing. Your information regarding diet, infection and medications was great. After a really yucky weekend, I am more convinced than ever that I have to do something about diet. This just isn't optional anymore and you helped me come to this conclusion. Thank you again!
Thanks for sharing
You have been through quite a journey! My daughter was diagnosed in May of this year with moderate UC. I did not even know what that was. She is 20 years old, the specialist we are seeing is awful, I have been looking desperately for answers since he already wants to put her up to the next drug level without explaining anything to her at all. It has been horrifying for me as a mother. I ordered your book in hope of answers. To be honest I was extremely depressed after reading your book and the experiences on your site, I had not idea it could be that bad. I bought the book your recommended "Breaking the Vicious Cylce" I feel very overwhelmed right now and she is tired of me talking about it but I am scared to death. Thank you for sharing and giving me some positive direction to follow. I am glad you are doing so well.
I loved it. The fact that you got better thru using the diet. It makes sense
I m so sick of meds that I will take any suggestion
Changed my life
I was diagnosed with UC 7 years ago. I never paid any attention to diet while increasingly stepped up meds have been ineffective and my UC has been getting worse. I discovered Adam's website and books and through them the SCD during a flare about 1 month ago. I started the SCD and prednisone during the flare. Since then, I have shown unbelievable improvement while tapering down the prednisone. UC symptoms are under control, chronic fatigue is gone, chronic tired/stress headaches have improved, and overall stress level down. Adam's story is a huge inspiration and I wish that anyone with UC is lucky enough to find the ihaveuc.com website to help better understand and manage their UC.
So glad I found your website and your book. It has really given me hope. I have started looking for other alternatives for my UC. Also knowing Im not alone makes things a bit easier to deal with. Thank you for taking the time to do all you do for everyone out there that has UC!!
Feeling Crappy to Feeling Happy
I found your book honest, refreshing, and it made me realize how I am not alone. I found your book funny at times and so hopeful. It makes me drawn to you and to want to get things under control. I also have found that you do not try to promote all the right answers and that is huge! From reading your book - I now believe that any form of therapy that works is the right answer - meds, surgery, diet, exercise, whatever... You are open-minded and just want everybody else to be able to communicate together to figure the "crappy parts" out. Thank you. Thank you so much for sharing your story and helping everybody know they aren't alone!
After reading your book, I felt normal again like a real person. Thank you so much for sharing your story, you have inspired me to find other solutions to the UC rather than meds. I went through a flare up now which has taken me a month to get over, so your book really gave my inspiration and drive to find better ways to deal with uc than just meds.
Thank you again for your contribution to the UC community.
It takes one to know one
Feeling Crappy to Feeling Happy is a candid, direct account of Adam's trajectory through UC challenge to, well, let's say triumph for now. He is the first to admit that this is a lifelong condition. Remission is not only possible but realistic. So are flares. He has great hints about reducing the chance of the latter. And he tells it like it is, so if you are offended by the various terms for poo (crap, shit, etc.) you have been warned. However, it might be a good idea to get used to it because it is almost impossible not to focus on poo with this disease. How many euphemisms can we invent? The book is funny, human and definitely one person’s inspiring journey which Adam is also quick to point out. What works for him might not work for you--he is sharing to help you/me find our own ways. (What no SCD yogurt?!-lucky you unless of course you like slaving over a yogurt brew every week or so). For me an acquired habit and taste.
So more about that sharing--feeling isolated, embarrassed, like a freak? Well he encourages us to meet a whole bunch of us. Not superheroes, definitely not freaks, although there are some aspects to quiet heroism going on here. Normal heroes who do regular things and amazing things while coping with our ambiguous situations. It is definitely possible to be happy. He encourages everyone to "tell their story" and get to know others. No you don't have to be cheerful if you are in a bad flare, nor do you have to be perky if that's not your style. Just make your story yours with a positive outcome. And come out of the closet already! At least to this safe group.
The last note is on his recipe book. I have a bunch of fancy Carbohydrate Specific Diet recipe books. They are great cause sometimes I love to cook. And I love beautiful food pictures. Most times I do not (like to cook). What Adam did differently with his recipes is become a great everyday SCD cook--focussing on things that he likes, are easy to make and fall within the SCD guidelines.
The books combined with the website/blog/newletter and resources are worth more than $35 (to me). You don't have to buy anything to join the mailing list or read tons of info on the website. The special thing about the books is that you get to know Adam and what works for him and how he got there. And maybe how you can too.
Good reading Adam,I\'m glad i found your web site,you & the others that write in seem to have helped me more than the doctors have, i have mild to moderate ac, was first diagnoised in 2011 with mild ac, i could eat almost anything without a problem drank coffee every day, Last Sept. hurt my back real bad & was taking ibprophen for pain. in december. had a bad flair been in it sence than, thay have me taking liaida been on this for 2 years before that asacol, for the last couple of mouth\'s also mesalamine enema\'s, bleeding seem\'s to have stoped,trying to follow your cook book & trying tips from those on your web site seem to help me more than doctors do. Tks for your web site Adam
Feeling Crappy to Feeling Happy
Your book and your website have been an excellent resource for the frequent, personal, and detailed information shared. In addition, your willingness to share yourself visually AND in writing encourages others, I think, to participate, learn, and share as well. Thank you from a mom who appreciates your determination, sensitivity, and good humor.
Purchased your books and read them through several times. Couldn't belive how dead on you were with what you went through and me, and all the other people with uc. It is almost like i wrote the book myself because of all the same things i went through that you did. Keep up the good word because there are alot of people out there that need the support of everyone that is dealing with this condition. Also you are right about letting your spouse and close family members in on what is going on with your uc. They will be there for you more then you know. Keep up the good fight! Best wishes, Mitch
Response: Thank you so much Mitchell for your kind words, and I wish the very best for both you and your family and especially your UC moving forward, Adam Scheuer
Thank you for sharing your story, my son was diagnosed with UC last year at age of 15, after having tummy and toilet issues for a good 6-9 months prior and then losing 20-30 kgs. Many trips to and from the GP, referred to a specialist and problem found from there. It has been a long road over the past year, what I found interesting is that his journey seems very much like yours. And thinking back about the childhood eating issues and 'fussiness' was obviously a very early sign. I have taken from your book to keep positive and although my son hasn't read it (yet), he is happy to listen to me relay some of your stories. What we have taken most is to keep positive, and when you are feeling good do everything you want to, cause the bad can happen overnight. Sadly we are now trying the immune suppressant medication as others were not working, but always try to supplement that with healthy eating. We are not ready to give up all medication as he did nearly lose his bowel due to the severity and 80% of it affected. It was refreshing although a bit sad to read your story, that you do get through it and can lead a very normal life once you get it under control. Your book has been an inspiration, hopefully we are on a good road now, Dr says we can look to reduce medication once had remission for at least 2 years - working towards that by having the meds and supplementing with good diet. And the banana smoothies are my son's favourite - was good to read you go through so many bananas. Thanks for sharing
Response: Dear Andrea,
I wish your son the very best in the coming months and years. The first year is almost always the hardest for people living with ulcerative colitis, but things can and most certainly will improve. I\'m glad he likes banana smoothies...those are super tasty and as you know one of my favorites too. I hope your son gets a chance to read the ebooks soon, and please stay in touch, Adam
Thanks for Sharing
Hi Adam, thanks for sharing your story. My boyfriend has UC and it was really helpful to read someone else's experience with it in depth. It has given me a better understanding of what you all go through physically and emotionally. I appreciate you sharing the little details, what worked and didn't work. And on top of it all it was an entertaining and well told story - a very quick read.
Response: Dear Amber,
Thank you for reading the ebooks, especially to be so motivated as a girlfriend to the point where you took the initiative to learn the inner details of what life is like with UC (Way to go!). I am pumped that you felt the story was entertaining as well, that brings a smile to my face:) I hope you enjoy the recipes in the cookbook, and please stay in touch whenever you like. -Adam
VERY INTERESTING AND HELPFUL
I really enjoyed the book!It was just nice hearing that your not the only one that has gone through all the things UC can put you through.Adam makes me laugh.His sense of humor is great,and some of the funny comments are like inside jokes that only if you have suffered with UC you really get.He cracks me up with just his funny little one line comments in the recipe book.Just nice to know there are others in world that get the things you have been though!It is something I will go back and reread alot.
Response: Hi Jimmie,
If the ebooks got you laughing, well that is super! Let me know how things go for you in the future and I rooting for many many years of remission for you so you can get back to doing what you would most like to be doing. Take care and thank you again for your feedback, Adam
I loved your personal story. I felt I was not alone unfortunately my Dr. let my condition go so bad I was malnourished and dehydrated and my bowel perforated, so I had to have emergency surgery.
Response: Dear Vin,
I am super sorry to hear that your condition was left untreated for so long, that is difficult situation to go through. Like everyone else, please stay in touch, and please continue to make use of the resources the site has to offer (even for people who have undergone surgery like yourself:) -Adam
Loved the story. It encouraged me tremendously. It reminded me I'm not alone fighting this battle. I have encouraged my family to read Adam's story to better understand what I go through.
Response: Excellent, I am super happy about that, and Linda, if any of your family members have any questions for me, please share my email address with them. Sometimes family members are scared to ask the actual person who has UC, pretty normal actually behavior actually, and I\'m happy to be someone for them as well if you/they like. Have a great year and thank you for your comments, Adam
It was a great story.... I love the way it was well written. It was helpful to understand what is it all about. I really enjoyed them very much. Thanks Adam!
Response: Thanks Carol,
And I\'m glad you enjoyed the ebooks. Definitely email me anytime if you have any questions along the way. I wish you the best,
Our Go to Book!
Adam!! Thank you so very much for this timeline of your life and the impact that UC has had on it....David my other half was diagnosed about 2 months ago and I am his "Michaela" :) I read the entire book in one sitting and he has been following the diet and keeping record of everything that happens following a meal. We are excited for the future for him to begin a normal life again (symptoms for a year...in denial for 10 months...) your story has given us both hope and now it is our go to book when we need some encouragement or help understanding what is going on. Thank you again for this...its has eased our minds on the disease and given us hope!
Response: Hey Coleen,
That is great to hear that David is getting things started with the diet changes. And definitely a great idea to keep a journal of all that along the way. That will help you figure the process out for sure. Keep me posted on how things go with his progress and wishing you the best in Forked River!
Feeling Crappy to Feeling Happy
I've had UC for forty two years! It started off in a small way and gradually over the years it has spread and worsened. This year I've been in various stages of flare up since January, it's now October. I was researching, something I do on a regular basis, for some new self-help/research answers when I came across Adam's website. Intrigued, I read on and watched his video then instantly purchased his book. Wow, it's great. I laughed out loud at some of the graphic, though absolutely true, descriptions of what we actually experience during a flare up. Consultant Doctors over here believe in medication not diet for UC. I was interested to read how sugar's a no-no, years ago I told my then specialist that when I was in one of my chocoholic phases within a few days later I started passing blood pr and a flare up ensued. His answer was, you must have IBS as well as UC. I thought GREAT, as if I didn't have enough problems! Now I know, from the info in Adam's book, that diet plays a huge role in controlling UC. I've never had a medic suggest diet for UC although it is widely recognised as being advantageous if you have Crohn's Disease.
Thanks Adam for the link to 'Breaking the Vicious Cycle'. I bought the book, read it from cover to cover and will now be embarking on the SCD proper, so to speak. I have noticed an improvement when not drinking milk, that was a by chance discovery, when I'd not had any for a few days.
I desperately want to be able to get off drugs and control my UC with diet, Adam showed how that can work. Obviously UC will never be cured just kept under our control by diet. I'll let you know how I get on and the results.
When I'm successful in controlling my UC with the diet and off meds I will post my success and give references to Adam's book to NACC - that's the National Association of Crohn's and Colitis in UK. You know how it is, the proof is in the pudding, so to speak.
Speaking of puddings, Adam's recipe book is good and I'll be trying his recipes. A couple of them are versions of what I've devised for myself - great minds or what?!
P.S. I can't get my head around the fact that even nurses and doctors often haven't got the remotest clue about how we actually feel and just how bad it can be. When I make an effort, as always, putting on makeup and dressing well to meet friends who ask how are you, when my reply's rough, their answer's you look well. I reply, it's a good thing I look good on the outside as the inside's crap!
One suggestion Adam, perhaps you could write a book that would educate nurses, medics and the general public. We fellow sufferers lap up the info but what about the healthy?
Thanks very much Adam for your books. Long may you stay healthy now you've cracked it.
Thank you, Adam, for writing down your story. It connects us all on the globe and since I found this website and read your books I don't feel lonely with my UC anymore.
There are so many things you described in your book I could strongly identify with, like experiencing early symptoms and being blind about them or feeling demoralised about bleeding into the toilet all the time. So many things I recognized, which made me feel so relieved on so many levels. It made me realize I wasn't a nut, that I'm neither stupid nor crazy or a wimp either. We're all just struggling with a really crappy dicease, and thanks to you we're doing it now with a laugh on our faces and a good portion of gallows humour.
I have found both books fantastic. Couldn't put Feeling Crappy down as it was describing my symptoms to a T, thank you. I have been feeling much better recently. Not sure if it because I am now on 25mg Mercaptopurine alternate days, the fact I am trying to follow SCD as best I can or a combination of both. Can only thank you again, Kathy x