Hi I’m John, 34 year old British Male, diagnosed 6 years ago with Complete UC. IT Manager. On Mezavant XL for last few years and WAS flare free for 3 years….until July 13.
Some more about me:
Laid back type of person most the time, stressy at work
Play Golf and enjoy changing my cars regularly
Symptoms I’m in the middle of:
Pain, Wind, Blood, Watery movements, aches and slight fever.
Been Clear For So Long with my Colitis…UNTIL NOW
Was diagnosed 6 years ago after quitting smoking, with hindsight – the worst decision ever. I’d rather have a few less years than UC.
Was put on Prednisolone and Asacol, though after tapering off the Pred, a flare would come on, so I was put on Azathioprine which was awful, so finally switched to Mezavant after many meets with the doctor – all because it’s expensive and the NHS don’t like giving it out??
SO over the last 3 years, I’ve generally been able to eat and drink what i wanted so can not complain at all.
That is until the beginning of July this year – Tonsillitis plus Antibiotics, not being able to swallow the Mezavant and so flare started, blood and mucus only, no urgency or pain. Tried to alter my diet and up my Mezavant though after a couple of weeks I had to get the doc to give me some Prednisolone. Was hoping to go with 30mg for a couple of weeks and then taper….
After a week no change was seen and the flare was bad, so doc said go to 40mg a day and see how it goes. Now after 2 weeks I’m feeling slightly better, less blood but still the urgency, wind pains and watery BM.
Really hoping they kick in soon, remember it took a good 4 weeks before i started tapering off the first time…
My unbelievable girlfriend has just gone out and got me some Imodium so i can get some sleep….2-3 hours a day is killing me.
No matter what I’ve done with my diet, it;s always the same, fine during the day, bit of pain and a few trips to the toilet. But at night, up 4-6 times.
Ate bananas and toast one day and was still up all night. Tried just chicken one day, no improvement, at a loss now.
Being screened for C Diff tomorrow though doubt it would be that easy.
Worst part is I’m supposed to be flying away to Croatia with my gorgeous girlfriend this Saturday. PLEASE IMODIUM WORK!!
written by John
submitted in the colitis venting area