ulcerative colitis ebook

At My Witts End

Submitted by Marcia

I was diagnosed with severe ulcerative colitis a little over a year ago right after having surgery to have my gall bladder removed. I don’t know if this was a coincidence or not. After first getting diagnosed I was put on sulfasalizine and prednisone. I went into remission for about 4 months. Once again a flare up came back in full force that has landed me in the hospital two times for several days each time. The meds are not working this time and I have been unable to work or pretty much do anything for the last six months. Then I became uninsured but finally started to see a new doctor and started on humira injections. I have been on these for about a month now so I have done the first six injections. I know they say it can take 2 months to work but I am desperate and at my witts end. Did humira put anyone into remission and if so how long did it take? I have been in this flare up for over 6 months now and am wondering if there is any hope besides surgery. I recently ordered the scd (specific carbohydrate diet) book to try that out. I am 35 years old and until I was diagnosed with colitis I knew nothing about it.

 





6 Responses to “At My Witts End”

  1. Victoria AnnApril 25, 2011 at 1:01 pm #

    Hello Marcia, Im so sorry to hear your having such a tough time. I live in the UK and have not heard of or been offered Humira injections before. I really hope they do work for you. I have had UC for 8 years and have a flare up about once a year since I was diagnosed. I usually end up taking a course of prednisolone and that sorts it out! To keep me in remission for most of the time I take azathioprine (immunosuppressant) and Mezavent (mesalasine). Im just coming out of another flare up and felt really low and lonely this time. Thats how I found this site and ive learnt some really helpful things. I too have just ordered the SCD diet books and am really looking forward to getting stuck into it. Hopefully it will mean I can reduce or stop my meds entirely.

    I really hope you feel better soon, good luck with the SCD diet. Keep us posted on your progress

    Victoria Ann x o x

  2. DebApril 25, 2011 at 3:46 pm #

    Marcia, yes there are other things to try before surgery. I go to Dr Krems in Marina del Rey, CA.
    He has been treating uc and chrohns patients with prescription herbs. He saved me from surgery and has helped others that i have recommended. I would give him a try first.

  3. DedeApril 25, 2011 at 5:35 pm #

    Hi Marcia, I agree with Deb–I would not rush into surgery, but I am someone who had surgery and it did help me go into remission (I have Crohn’s)! Maybe see if the drugs work, first, since you are already on them but build up your immune system with the healthy diet and perhaps some herbs–I did a course of Cipro, which really helped–was on prednisone for a few months… I was able to go five years before having surgery, using a naturopath and really make some major lifestyle changes–I started exercising, doing yoga, getting sleep, drinking water, etc. and gradually reduced stress. Good luck!

  4. Dede CummingsApril 25, 2011 at 7:16 pm #

    Hi again! I couldn’t get to sleep and remembered when I had a major flare (again with Crohn’s, but similar), I had abdominal surgery to see what was the matter with NE–they thought it was ovaries–but I remember the doctor said I had an obstruction, an impacted bowel. So what I wonder us, after the gallbladder surgery, did any adhesions (scarring) form around the colon to cause such a severe case? Might be worth asking your GI if possible– maybe they can do a laproscopic surgery to see what is going on? Bummer about you gallbladder–mine acted up and I had kidney stones but both cleared up when I went into remission. A naturopathic doc (with a 4 year degree!) can order some digestive enzymes to help perhaps– and are you taking fish oil Omega 3 caps? A big help!

  5. helenApril 26, 2011 at 3:45 am #

    Hi Marcia,
    I was diagnosed with UC nearly 6 years ago. I have been on prednisone, predfoam, colifoam, pentasa, imuran, infliximab/remicade, salazopyrin etc. I am now on 6 salazopyrin a day with Humira injections once a forthnight and while I have had reduced BM’s and less pain and blood – my joint pain is WICKED! I am only on Humira since 21st February and am hoping I will see more improvements as time goes by. I am convinced my joint pain has become worse since I started Humira however.

    Do you suffer with joint pain at all, and if so has the Humira helped it? I hope the SCD helps you feel better soon. Good Luck with it, Helen.

  6. Peter NZApril 26, 2011 at 4:39 pm #

    Hey dude,
    It sure does freak you out at first. I got better (as have many others on this site) and am now back to “normal”. It is a hard thing to get your head around but is not the end of the world. One day at a time and perspective comes.
    I suggest not to eat animals and gluten. Works a treat for me.
    All the best,
    Peter

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