Ulcerative Colitis Tips


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"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

Any Advice, I’m Taking Lialda for My Colitis

My name is Sarah I am 35 years old and I was diagnosed with Ulcerative Colitis almost 10 years ago. I have been in remission (no bleeding) for over a year thanks to Lialda. I still get mild bouts of diarrhea here and there, but nothing severe until lately. 2 weeks ago I started having some issues again. I have had no appetite and get diarrhea after everything I eat no matter what it is. I’ve been drinking a lot of water and taking Imodium.

I was wondering if anyone had any advice?

Submitted by Sarah in the Colitis Venting Area

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3 Responses to Any Advice, I’m Taking Lialda for My Colitis

  1. Nicholas Renard August 6, 2011 at 7:32 pm #

    Sarah,

    Like you I have had UC for ten years, this month. I had taken sulfasalazine tablets for 9 years with little to no issues. Last summer I had my first serious flare where I had to go to the doctor and take other medication to get it under control. The doctor told me after being on one medication for a long time, your body can build up a resistance to it. Basically the medication that worked great for several years no longer would work. I tried lialda, but it wasn’t for me and I had another flare 6 months later. I have been on Asacol hd now for awhile and I like it, for the most part. I had my worst flare since I originally got diagnosed this summer, but a lot of that I blame on myself and not taking good care of myself and some other things. I am finally get back to my normal and tapering off of prednisone.

    I think every medication has a shelf life for us and when it stops working, time to look at a new approach. There seem to be a lot of options as mess go and like everything else with this disease, everyone is different and responds differently.

    Keep your head up and try a new approach. Talk to your doctor and try a new medication.

    Good luck,

    Nick

    • Sarah August 8, 2011 at 7:32 am #

      Thanks, Nick. I was on Asacol for the first 8 years then switched to Lialda around 2 years ago. I have been feeling a bit better for the past 3 days. Thank goodness! I was on Prednisone and it always works really well for me.

  2. Mark August 10, 2011 at 8:52 am #

    Hi Sarah,

    Sorry to hear that you are in a flare. I was diagnosed with Pancolitis in 2004 and have been on Asacol ever since. Currently I am experimenting with the SCD diet with good results – I am in my second week. The attached web address is something they posted – it is a 5 day diet for a flare. Hope it might help. http://scdlifestyle.com/advanced-scd/5-day-diet/

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