Although I was diagnosed at 25 (23 years ago), I have had less than 5 flares all of which have been managed and cleared with sulfasalazine (oral) and asacol (enema). Until now. I am well into the second month of a particularly nasty flare, and am getting NO relief from medication. I was hesitant to consult my gastro, because I do not tolerate steroids well, and know that they will be his next line of treatment. Alas, I am finally going to see him on Tuesday because I cannot function with this little energy any longer.
I am hopeful that my gastro will agree to a trial with cortaid enema and sulfasalazine orally. Has anyone had success on this? Also, what is the likelihood that my Ulcerative Colitis, which has always effected only a small area of my descending colon, has now spread to effect ascending and transverse. My last flare was about 3 years ago, and I do not recall having such widespread pain. Also, although I just discovered the Specific Carbohydrate Diet here, I have been following a diet that seems closely related, with no measurable result (no grain, no dairy, no sugar, no coffee or caffeine, no raw veggies, etc). Any ideas? I was at a conference last week, and the food choices were very limited. I found that I was eating a lot of potatoes as they seemed the least evil of the choices. I have felt worse since and wonder if the potatoes have anything to do with it. I am drinking only water and coconut water. Am convinced that the SCD will work for me so I’m ordering the book and intend to begin. Any advice will be appreciated.
If you are interested in starting the SCD diet too, you can
Many of us from the site follow SCD to treat our Colitis