Introduction:
Hi- My name is Carol. I have been married for forty years ( I was a child bride)
and have three grown sons and on Grandson. I have had Ulcerative Colitis for about 8 years and I am thoroughly disgusted. I wish I had a normal life!!!!
My Symptoms:
I run to the bathroom , passing blood, without stool. I tend to constipation, which is rare for this condition. With every flare up- at least twice a year, It takes longer to heal!!!!
My Story:
I am a sixty two year old woman, who has suffered with ulcerative colitis for about eight years now. When I have a flare, I try, Canasa, Rowasa, Lialda, and usually don’t respond well to any of these, so I am put on at least 60 milligrams of Cortisone, until the flare, subsides, and then I taper off. Last time it took me, eleven months, to taper off. I had “The moon face”” and my hair would start falling out. I am so discouraged. There are so few meds to treat this awful disease. I am also taking a pro-biotic, Folic Acid, and have restricted my diet- with hopes of feeling better.
My quality of life is so terrible when I am in a flare. I work out of the house, and am very weak due to all of the bleeding. I don’t want to quit my job, because at least I have something to look forward to- otherwise I would stay home and feel sorry for myself!!!
I was also told to try fish oil, which I am going to buy today.
I think the alternative methods for treating UC are probably better than the traditional ones.
There are so many other alternative methods that I have heard about.
Does anyone out there have any other current ways of treating your UC that you feel can help me?
Since having my UC flare ups, I have found that many of my friends don’t call me as often, because they don’t like hearing me complain, when I am sick, so much!! Of course my dearest friends, are worried about me, and they call.
My husband is very supportive, and feels bad for me.
I go for colonoscopies so often- I go twice a year. I hate the cleaning out part- especially, since I am bleeding.
I guess my biggest fear, is that the bleeding will be so severe, that someday I will have to call 911., and that my UC will turn cancerous !!!!!
My quality of life is so terrible when I am in a flare. I work out of the house, and am very weak due to all of the bleeding. I don’t want to quit my job, because at least I have something to look forward to- otherwise I would stay home and feel sorry for myself!!!
I was also told to try fish oil, which I am going to buy today.
I think the alternative methods for treating UC are probably better than the traditional ones.
There are so many other alternative methods that I have heard about.
Does anyone out there have any other current ways of treating your UC that you feel can help me?
Since having my UC flare ups, I have found that many of my friends don’t call me as often, because they don’t like hearing me complain, when I am sick, so much!! Of course my dearest friends, are worried about me, and they call.
My husband is very supportive, and feels bad for me.
I go for colonoscopies so often- I go twice a year. I hate the cleaning out part- especially, since I am bleeding.
I guess my biggest fear, is that the bleeding will be so severe, that someday I will have to call 911., and that my UC will turn cancerous !!!!!
Where I’d Like to be in 1 year:
UC Free!!!!!!!!!!!!!!!!
Colitis Medications:
I have been on Lialda, Azacol, Rowesa enemas, Canasa suppositories, Cort-Enemas, and the only thing that stops my bleeding is high doses of Prednisone- which have so many bad side effects- weight gain,”Moon Face, hair loss, and makes me very irritable!!!
written by Carol
submitted in the colitis venting area
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My name is Carol. I have been married for forty years ( I was a child bride)
and have three grown sons and on Grandson.I have had UC for about 8 years and I am thoroughly disgusted. I wish I had a normal life!!!!
