About

Adam from ihaveuc

My name’s Adam and I have UC.  But that’s alright, UC is a disease that can be beaten, and life for sure can go on after your diagnosis.

I started iHaveUC.com back in January of 2010 with the hopes of connecting with other UC’ers.  If you are new to the website or my e-Books, you’ll learn very quickly why I’m a firm believer that interacting with others is crucial to beating this disease.  Many people that I meet believe their lives are over with a UC diagnosis, far too many people.  They think their lives are doomed to “being sick forever”.  That’s just not true, life for sure goes on, and the painful symptoms can go away no matter how young or old you are.

So what about my colitis?  Am I some rare or special UC patient?.  Actually, I’m more or less the common story.  Probably just like you.  Before I was diagnosed, I went for months and years struggling with undiagnosed symptoms.  Then of course the bleeding came along, and I still didn’t tell anyone.  When things got really bad, I eventually got a colonoscopy and received the news: “Ulcerative Colitis”.  From there, I started all sorts of medications, and unfortunately I had very limited success.  Eventually I had to deeply consider surgery because none of the medications were working well.

Luckily, with a little help from another UC patient, I was able to take control of my colitis with some diet changes(I talk about this in several posts on the site and in full detail in my ebooks).  I always thought diet must have something to do with my colitis, but all my doctors disagreed.  Well…the rest is history.  The overwhelming majority of my post-diagnosis days have been medication free and I never ended up having surgery.

So THANK YOU for visiting iHaveUC.com.  There is all sorts of things you can do here to help out with you colitis.  It has taken me thousands of hours to put it all together over the years, but it has been well worth it.  There is a ton of super valuable information here, written by and for people who have ulcerative colitis.  People have let me know over and over again that the website is the most comprehensive ulcerative colitis site ever, and that’s a huge compliment indeed.  I hope you feel the same as well.  That is the goal.

Things You’ll Want to Do Next:

  1. JOIN the website’s FREE newsletter.  It’s an absolute must if you have UC – click here
  2. VIDEOS. Do you like them? OK, I do too.  Watch my videos – click here
  3. READ.  I’ve written over 200 posts on various UC topics.  They are ALL FREE – click here
  4. READ MORE.  1600 other stories from other UC’ers who have contributed over the years – click here
  5. DOWNLOAD.  Read the ebooks I’ve written. (They are not free, but well worth the investment)click here

Thank you again for being a part of the website, I hope you enjoy iHaveUC.  Most importantly, especially for those of you who are suffering from out of control UC symptoms right now.  You have to realize one thing:  UC symptoms can be awful, horrible, the worst thing in the world.  That is for sure.  BUT, active symptoms don’t last forever, and we all have options.  So keep your head up.  Life does get back to normal and happy days are not far away.

Warm regards and healthy days ahead,

Adam Scheuer

12 Responses to About

  1. Paula November 28, 2012 at 9:27 pm #

    Hi Adam or Any Fellow UC family,
    My 14 year old son was diagnosed with UC 0 July 2012. Was hospitalized for 2 months, has had 4 infusions of remicade and unfortunately there was no great improvement. He has had c-diff twice in the past 4 months. He is up for another dose of remicade and the GI says it now has to be every 4 weeks. We have until Friday to decide if we are moving forward with it. Right now he is on full TPN, full bowel rest and the bleeding is very mild. He does get low grade fevers though. How was your experience to get off the Remicade? PLease help. We are giving him Slippery Elm bark 3 x a day, Probiotics, and Turmeric. Can there be life without the Remicade??

    • Adam November 28, 2012 at 10:19 pm #

      Hey Paula,

      I’m sorry your young son is in the middle of getting diagnosed and getting back to a state of normal. Unfortunately, everyone’s got to go through that period, and he will as well.

      As for your question with regards to Remicade, I initially responded very well to the first infusion with noticable improvement in less than 2 days, however towards that and right before the second infusion, things started to fall off and symptoms returned for me, and the 2nd and 3rd infusion were of little/no benefit, so we decided to stop.

      I’d recommend that you read the Remicade survey results from many other UC’ers. We conducted that survey several months ago, and it may help you out with your research and decision making. Here is the link to that: http://www.ihaveuc.com/remicade-infliximab-reviews-and-survey-for-ulcerative-colitis/

      As for can there be life without Remicade, most certainly there can be. I think I’m proof of that along with thousands of others, so keep your spirits and head up. The tuff times will pass as they always do.

      -Adam

      • Vishal December 8, 2012 at 2:30 am #

        Hi Adam ,

        This is Vishal ,
        My wife was diagnosed with ulcerative pan colitis last year , she was on sterioids for 3 months & now she is taking Sezo 500.
        She is feeling ok now.

        We are pure vegetarian from india , so can you help me with the VEG SCD Diet chart,

        Thanks
        Vishal…

        • Adam December 8, 2012 at 2:35 am #

          Hey Vishal,

          What you might want to do is take a look at this website link, there is a list of legal and illegal SCD foods listed and nearly everything you can imagine is shown. You should get some ideas on veggies that work well and others that are more difficult. here’s the link: http://www.breakingtheviciouscycle.info/legal/listing/

          -Adam

  2. Mike from Ohio
    Mike H December 10, 2012 at 9:26 pm #

    Adam,
    I hope you read this post and respond. I have been fighting this UC disease for 23 years now and I am about to lose. I have tried many diets including the SCD with no real results. My latest flare has lasted nearly three years non-stop and has resulted in an emergency appendectomy and then the removal of my gall bladder and due to fears of a performation a trip to the Cleveland Clinic for removal. I have tried all the meds with no results, I have actually gotten worse and my entire colon is now a rotten looking useless piece of I don’t know what. I think something we need to look into is that once your gall bladder is removed your UC will probably get worse due to the violent nature of bowel movements due the uncontrolled amount of bile getting into your system (bile reducers do not work). I have now lost 45 pounds in the last 4 months and have the debilitating joint pain as well with no relief in sight. For some reason I am the proof that not everyone can fight this disease and overcome. I am being told by many in my support group and on this website that after the surgery I should feel like a new person again. Please do not get me wrong, nobody wants to live life without a colon but in my case I have no life with a colon. I am also being told by some that have had the surgery that the joint pain will go away once the colon is removed. Do you know of or has anyone ever commented on this? Wish me luck and for anyone facing the surgery please read the “one month after colon removal” on this site by Blake. It does help and also read the book Great Comebacks from Ostomy Surgery by Rolf Benirschk.

    • Adam December 10, 2012 at 10:59 pm #

      Hey There Mike,

      First of all, I am terribly sorry to learn that times are/have been so horrible for you, and I’m sure you are extremely frustrated with little/no progress after all your hard work in trying to get past the symptoms.

      You’ve got some really great questions, both in terms of the gall bladder removal and as well with what to expect in terms of the joint pain issues post surgery.
      A moment ago, I posted on the http://www.facebook.com/ihaveuc group page your question with regards to the joint pains, and I’m hoping shortly there will be some resopnses from others who have already had colon surgery. About two years ago this question came up and I vaguely remember a girl named Ashley who has posted about her surgery talking about this, and unfortunately I believe she mentioned that she still dealt with some joint issues from time to time (but I’m not certain) and I’m hoping to see some more recent responses. So if you use facebook, you should check out the group(which you may already be a part of) and I think that is going to be the best place for followup on this.

      With regards to Gall Bladder removal, I am no expert by any means with this, however, there as well have been at least one story posted by another UC who mentioned this I recall from either earlier this year or late 2011. You can search “Gall Bladder” in the search bar on the top right hand of the site and then you should get a listing of “gall bladder” mentions from within the site.

      But, I did just complete a quick PUBMED search, and there was an article that caught my attention that you might be interested in reading on this topic. It’s titled:

      “Cancer of the bile ducts associated with ulcerative colitis.”

      here is the link, and you can even download the full study there and read it if you like:

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1343853/

      Mike, I wish you the very best moving forward, and I most definitely hope that 2013 brings you some normal living which you for sure deserve.

      -Adam

  3. Angela February 1, 2013 at 11:37 am #

    Hi Adam,

    I just found your site. I’m so glad you made this site and to share your story! I’m only 24 and I was diagnosed over 10 years ago and when I was diagnosed the only support site was a chat board hosted at John Hopkins. I’m glad this site was realized and that you can help people!

    I also just wanted to share my story to help give people you are early in their diagnosis some hope! I was also diagnosed in 2001 with severe pan colitis as well as Autoimmune Hepatitis (my immune system also attacks my liver but luckily that went into remission in 2002). I made it through a toxic reaction to 6MP, being on 20 mg a day of prednisone for 3 years (subsequently becoming prednisone dependent) and not having methotrexate work by itself. I finally made the decision at in 2004 to start Remicade (it wasn’t even approved for UC yet!) I was able within a year to get off prednisone and with 4 to get off methotrezate. And I have been on it for 8 years at 5 week intervals and this past year finally went in to remission! Since I hit the 10 year mark of an active disease I have started cancer screenings which I feel everyone hitting this milestone should discuss with their doctor!

    Despite all of this I played varisty in two sports in high school, went to the college of my dreams and graduated with a degree in architecture. Studied abroad for a year in London and Florence and Japan! And actually received my remicade infusions at hospitals there! I’m now in grad school and will actually be making it to present at a conference in Greece. I am also an avid scuba diver and an hiker. I’ve hiked in the Adirondack Mountains, Ireland, and Mt. Fuji.

    What I hope other UC suffers will take from this is that you can still live your life to the fullest with UC. You can’t look at anything as a limitation. THIS WILL MAKE YOU STRONGER! And give you the drive to get out and enjoy life. You can’t be afraid of what the future might bring or what if something stops working because it will only limit you. I don’t know how much longer I can stay on remicade but there are always “if’s”. Do what you love no matter what! Also, stay on top of research being done about UC. Being informed will make everything less scary and will allow you have really productive conversations with your doctor.

    And for all those pasta lovers like me, try Dream Fields Pasta! Tastes like the regular pasta except that it has a low glycemic index as it was made for diabetics. It doesn’t affect my colon. My other diet recommendations that have worked for me…stay away from artificial food dyes (especially red and blue), anything with lots of preservatives (I cook fresh daily), I avoid beer and alcohol although do occasionally enjoy it maybe once a month, stay away from nuts, and really just find what works for you.

    Also, a tip for the women (guys can ignore)try birth control. There are new studies that are trying to establish a connection between the hormone changes during your periods and flare ups. Limiting the amount you have can dramatically help your flare ups. I made this switch about a year before I went into remission. I can’t definitively say that’s what made the difference but I do believe it helped. Talk to your OBGYNs.

    Here’s the article: “The menstrual cycle and its effect on inflammatory bowel disease and irritable bowel syndrome: a prevalence study.”

    http://www.ncbi.nlm.nih.gov/pubmed/9772046

    I hope somebody finds something that can help them in this! I wish you all the best health and happiness!

    -Angela

    • Adam March 4, 2013 at 4:21 pm #

      Thanks Angela for all the great info, and super cool to hear/see how you’re still rocking it hard with your UC! keep it up!!!

      –Adam

  4. Yvonne March 25, 2013 at 8:04 am #

    Hi Adam,

    Just a quick question…I seem to remember reading a post from you mentioning bifido bacteria in probiotics and that it should be avoided. I have tried to find the post again but haven’t had any luck. There seem to be mixed reviews on this and I’m a little confused about bifido versus bifidus etc. Can you shed any light on this? Thanks so, so much for your time. Have a fantastic week!! Yvonne

    • Adam March 26, 2013 at 2:40 pm #

      Hey Yvonne,

      Bifidus is a strain of bacteria that people often avoid, especially in terms of making homemade yogurt, and if you are following the SCD diet. What’s crazy about Bifidus is how it comes in a bunch of different varieties. For example there’s Bifidobacterium Bifidum, and there’s also one called Lactobacillus Bifidus, and even Bifidobacterium Longum.

      Also, like everything, you’re for sure going to see mixed reviews. But again, if your leaning more on the SCD diet side of things, then this is pretty much why you would avoid Bifidus, the SCD’ers of the world feel it can lead to a harmful bacterial overgrowth within the gut.

      best of luck!

      -Adam

  5. Alireza April 26, 2013 at 1:31 am #

    Dear Dr Adam. I really do hope to get an answer from u as soon as possible. I am 49 and 7 months.(Muslim) during Ramadan month I did not eat food for about 5 nights and become very thin with conspitation and a little blood from anal fissure(hemorroeid operation was about 21 years ago)A doctor prescribed some medcine for that problem but after a while I felt my stomach pumps acid and I’m reluctant to eat food( nervous condition affected me too).Andescopy showed multiple erosions and I took some medcines and I looked better after a while .But a couple of weeks after cutting the drugs I noticed my stool alternates to normal or daiherra or sometimes mucus only( stool test showed no Bacteria or blood) I can only eat boiled chicken or red meet an Fish(salmon) in fer sometimes with boiled potatoes and carrots. Another doc said you should prepare for Colonoscopy test but I am too weak to take this test with special syrups and pills like Bisacodils that make my bellies soften with force. Please show a better and easier way and is it dangerous to post pone the test? It’s about 5 months starting the problem. I am really terrified.

    • Adam April 28, 2013 at 5:14 am #

      Hi Alireza,
      Please realize, I am NOT a doctor, but rather an ulcerative colitis patient. That said, it is almost always a good idea to move on with a colonoscopy when it is being recommended, especially if you do not know what is currently wrong. Ulcerative colitis for example is almost always diagnosed via colonoscopy or sigmoidoscopy. The prep is no fun, that is for sure, but a necessary evil.

      I wish you the very best no matter what decisions you make moving forward,
      Adam

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No matter what, colitis flares don't last forever, don't forget it:)