Ulcerative Colitis Tips


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The website is created for people living with ulcerative colitis and family and friends as well. The stories and ideas that are posted on this website are written by people living with UC, and the same is true for the "Ulcerative Colitis Tips" FREE eBook. After joining our newsletter, you will be sent a special link to download the eBook right now. You can unsubscribe from our newsletter at anytime, but you will probably want to stick around with the 15,000 other subscribers just like you!


About

Adam from ihaveuc

My name’s Adam and I have UC.  But that’s alright, UC is a disease that can be beaten, and life for sure can go on after your diagnosis.

I started iHaveUC.com back in January of 2010 with the hopes of connecting with other UC’ers.  If you are new to the website or my e-Books, you’ll learn very quickly why I’m a firm believer that interacting with others is crucial to beating this disease.  Many people that I meet believe their lives are over with a UC diagnosis, far too many people.  They think their lives are doomed to “being sick forever”.  That’s just not true, life for sure goes on, and the painful symptoms can go away no matter how young or old you are.

So what about my colitis?

Actually, I’m more or less the common story.  Probably just like you.  Before I was diagnosed, I went for months and years struggling with undiagnosed symptoms.  Then of course the bleeding came along, and I still didn’t tell anyone.  When things got really bad, I eventually got a colonoscopy and received the news: “Ulcerative Colitis”.  From there, I started all sorts of medications, and unfortunately I had very limited success.  Eventually I had to deeply consider surgery because none of the medications were working well.

Luckily, with a little help from another UC patient, I was able to take control of my colitis with some diet changes(I talk about this in several posts on the site and in full detail in my ebooks).  I always thought diet must have something to do with my colitis, but all my doctors disagreed.  Well…the rest is history.  The overwhelming majority of my post-diagnosis days have been medication free and I never ended up having surgery.

THANK YOU for visiting iHaveUC.com!

There is all sorts of things you can do here to help out with you colitis.  It has taken me thousands of hours to put it all together over the years, but it has been well worth it.  There is a ton of super valuable information here, written by and for people who have ulcerative colitis.  People have let me know over and over again that the website is the most comprehensive ulcerative colitis site ever, and that’s a huge compliment indeed.  I hope you feel the same as well once you really get into it.  That’s the whole goal.  UC definitely doesn’t need to be some big scary disaster that never ends.

Things You’ll Want to Do Next:

  1. Join the website’s newsletter.  Takes about 2 seconds – click here
  2. Videos. Do you like them? OK, I do too.  Watch my videos – click here
  3. Read.  I’ve written over 200 posts on various UC topics.  They are ALL FREE – click here
  4. READ MORE.  1600 other stories from other UC’ers who have contributed over the years – click here
  5. My eBooks.  Read em! (They are well worth your time & investment)click here

Thank you again for being a part of the website, I hope you enjoy iHaveUC.  Most importantly, especially for those of you who are suffering from out of control UC symptoms right now.  You have to realize one thing:  UC symptoms can be awful, horrible, the worst thing in the world.  That is for sure.  BUT, active symptoms don’t last forever, and we all have options.  So keep your head up.  Life does get back to normal and happy days are not far away.

Warm regards and healthy days ahead,

Adam Scheuer

38 Responses to About

  1. Paula November 28, 2012 at 9:27 pm #

    Hi Adam or Any Fellow UC family,
    My 14 year old son was diagnosed with UC 0 July 2012. Was hospitalized for 2 months, has had 4 infusions of remicade and unfortunately there was no great improvement. He has had c-diff twice in the past 4 months. He is up for another dose of remicade and the GI says it now has to be every 4 weeks. We have until Friday to decide if we are moving forward with it. Right now he is on full TPN, full bowel rest and the bleeding is very mild. He does get low grade fevers though. How was your experience to get off the Remicade? PLease help. We are giving him Slippery Elm bark 3 x a day, Probiotics, and Turmeric. Can there be life without the Remicade??

    • Adam
      Adam November 28, 2012 at 10:19 pm #

      Hey Paula,

      I’m sorry your young son is in the middle of getting diagnosed and getting back to a state of normal. Unfortunately, everyone’s got to go through that period, and he will as well.

      As for your question with regards to Remicade, I initially responded very well to the first infusion with noticable improvement in less than 2 days, however towards that and right before the second infusion, things started to fall off and symptoms returned for me, and the 2nd and 3rd infusion were of little/no benefit, so we decided to stop.

      I’d recommend that you read the Remicade survey results from many other UC’ers. We conducted that survey several months ago, and it may help you out with your research and decision making. Here is the link to that: http://www.ihaveuc.com/remicade-infliximab-reviews-and-survey-for-ulcerative-colitis/

      As for can there be life without Remicade, most certainly there can be. I think I’m proof of that along with thousands of others, so keep your spirits and head up. The tuff times will pass as they always do.

      -Adam

      • Vishal December 8, 2012 at 2:30 am #

        Hi Adam ,

        This is Vishal ,
        My wife was diagnosed with ulcerative pan colitis last year , she was on sterioids for 3 months & now she is taking Sezo 500.
        She is feeling ok now.

        We are pure vegetarian from india , so can you help me with the VEG SCD Diet chart,

        Thanks
        Vishal…

        • Adam
          Adam December 8, 2012 at 2:35 am #

          Hey Vishal,

          What you might want to do is take a look at this website link, there is a list of legal and illegal SCD foods listed and nearly everything you can imagine is shown. You should get some ideas on veggies that work well and others that are more difficult. here’s the link: http://www.breakingtheviciouscycle.info/legal/listing/

          -Adam

          • Erin Lopez-Cadena,PhD January 22, 2015 at 1:07 am #

            Thank you for this information. My husband had his first horrible flare up this past Saturday. It was so severe I had to call 911. He was in so much pain. The books and websites you are sharing are awesome. Thank you! I need all the information I can get to help my husband.

    • Linda Hill August 13, 2016 at 11:07 am #

      I’m on my second day of a med new to me Uceris. Just wondering if others have taken this med & how they’ve responded.

      • Adam
        Adam August 16, 2016 at 2:04 pm #

        Hi Linda,

        Here is a great page with other UC’ers reviews from taking UCeris. You just need to scroll down the link, and there are many reviews to read:

        http://www.ihaveuc.com/uceris-reviews-a-new-colitis-medication/

        Best to you,
        Adam

      • Paulette November 26, 2016 at 9:57 am #

        Hi Linda
        I know this is way after the fact but I took Uceris for almost a year!
        I was in such a bad flare it seemed no matter what I did, or didn’t do food wise didnt matter at all.
        At the time I was taking mesalamine anti inflamatories and then my body just resisted them.
        I started getting better within a week of taking Uceris.
        There were indeed side effects.
        I always felt like my head was on fire, some double vision, anxiety,
        disorientation, etc but Uceris DID get me out of the flare.
        I watch what I eat, take probiotics, follow tge SCD diet but there are times, for no apparent reason, the colon wants to pick a fight with you!
        My doctor took me off Uceris and told me I had depended on it way too long.
        I take Apriso, alternate it with Lialda every few months and my colon seems to accept that for now

  2. Mike from Ohio
    Mike H December 10, 2012 at 9:26 pm #

    Adam,
    I hope you read this post and respond. I have been fighting this UC disease for 23 years now and I am about to lose. I have tried many diets including the SCD with no real results. My latest flare has lasted nearly three years non-stop and has resulted in an emergency appendectomy and then the removal of my gall bladder and due to fears of a performation a trip to the Cleveland Clinic for removal. I have tried all the meds with no results, I have actually gotten worse and my entire colon is now a rotten looking useless piece of I don’t know what. I think something we need to look into is that once your gall bladder is removed your UC will probably get worse due to the violent nature of bowel movements due the uncontrolled amount of bile getting into your system (bile reducers do not work). I have now lost 45 pounds in the last 4 months and have the debilitating joint pain as well with no relief in sight. For some reason I am the proof that not everyone can fight this disease and overcome. I am being told by many in my support group and on this website that after the surgery I should feel like a new person again. Please do not get me wrong, nobody wants to live life without a colon but in my case I have no life with a colon. I am also being told by some that have had the surgery that the joint pain will go away once the colon is removed. Do you know of or has anyone ever commented on this? Wish me luck and for anyone facing the surgery please read the “one month after colon removal” on this site by Blake. It does help and also read the book Great Comebacks from Ostomy Surgery by Rolf Benirschk.

    • Adam
      Adam December 10, 2012 at 10:59 pm #

      Hey There Mike,

      First of all, I am terribly sorry to learn that times are/have been so horrible for you, and I’m sure you are extremely frustrated with little/no progress after all your hard work in trying to get past the symptoms.

      You’ve got some really great questions, both in terms of the gall bladder removal and as well with what to expect in terms of the joint pain issues post surgery.
      A moment ago, I posted on the http://www.facebook.com/ihaveuc group page your question with regards to the joint pains, and I’m hoping shortly there will be some resopnses from others who have already had colon surgery. About two years ago this question came up and I vaguely remember a girl named Ashley who has posted about her surgery talking about this, and unfortunately I believe she mentioned that she still dealt with some joint issues from time to time (but I’m not certain) and I’m hoping to see some more recent responses. So if you use facebook, you should check out the group(which you may already be a part of) and I think that is going to be the best place for followup on this.

      With regards to Gall Bladder removal, I am no expert by any means with this, however, there as well have been at least one story posted by another UC who mentioned this I recall from either earlier this year or late 2011. You can search “Gall Bladder” in the search bar on the top right hand of the site and then you should get a listing of “gall bladder” mentions from within the site.

      But, I did just complete a quick PUBMED search, and there was an article that caught my attention that you might be interested in reading on this topic. It’s titled:

      “Cancer of the bile ducts associated with ulcerative colitis.”

      here is the link, and you can even download the full study there and read it if you like:

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1343853/

      Mike, I wish you the very best moving forward, and I most definitely hope that 2013 brings you some normal living which you for sure deserve.

      -Adam

    • Apple May 24, 2015 at 9:46 pm #

      I just want to share a little about my recent experiences and how every one with UC should be aware of this. I thought I had a bad flare for the last 10 months (and I possibly had some what of a flare but this was not the problem). After losing 30 pounds and becoming so weak that I could no longer care for my toddler, running to the bathroom every 5-10 minutes day and night, not getting any sleep, constently having accidents, not being able to leave my house, basically living a nightmare. My husband finally forced me to go to the ER, it turns out, the problem was that I had an infection called “Clostridium Difficile Infection”. I had never heard of it but it is supposed to be very common with people who have UC or Crohns. We still don’t know what caused it because it usually happens when a person with UC takes antibiotics, which I did not take. But i just want to let everyone know that in this case diet did not fix the problem because it was a different problem which could have caused me a lot of harm if I wouldnt have checked in to the 1 week long and intense hospital stay. Good luck to all!

      • Adam
        Adam June 13, 2015 at 3:22 am #

        Hi Apple,
        Thanks for sharing your experience, and yes indeed C-diff is something that we all should be aware of. One of the messages I send to everyone who joins the newsletter is about c-diff because often GI doctors don’t mention this to UC’ers when they are diagnosed and as you’ve experienced yourself (me too) we as a UC group of folks are at a higher risk/more prone to coming down with it.

        Glad you’re feeling better and thx for sharing,
        Adam

    • Palden March 31, 2016 at 1:18 pm #

      I joined this list as someone who did not have UC, but lived without colon use for the past six years. My problem was endometriosis stage four, gripping my rectum. The pain was something dull but nagging and chronic. So my deepest empathy to all. During that time I had constant joint pain, when my colon would would block up back would be lower back and joint pain in the back of my legs behind the knees. My empathy to all. I have a j-pouch and love life without an ostomy!

  3. Angela February 1, 2013 at 11:37 am #

    Hi Adam,

    I just found your site. I’m so glad you made this site and to share your story! I’m only 24 and I was diagnosed over 10 years ago and when I was diagnosed the only support site was a chat board hosted at John Hopkins. I’m glad this site was realized and that you can help people!

    I also just wanted to share my story to help give people you are early in their diagnosis some hope! I was also diagnosed in 2001 with severe pan colitis as well as Autoimmune Hepatitis (my immune system also attacks my liver but luckily that went into remission in 2002). I made it through a toxic reaction to 6MP, being on 20 mg a day of prednisone for 3 years (subsequently becoming prednisone dependent) and not having methotrexate work by itself. I finally made the decision at in 2004 to start Remicade (it wasn’t even approved for UC yet!) I was able within a year to get off prednisone and with 4 to get off methotrezate. And I have been on it for 8 years at 5 week intervals and this past year finally went in to remission! Since I hit the 10 year mark of an active disease I have started cancer screenings which I feel everyone hitting this milestone should discuss with their doctor!

    Despite all of this I played varisty in two sports in high school, went to the college of my dreams and graduated with a degree in architecture. Studied abroad for a year in London and Florence and Japan! And actually received my remicade infusions at hospitals there! I’m now in grad school and will actually be making it to present at a conference in Greece. I am also an avid scuba diver and an hiker. I’ve hiked in the Adirondack Mountains, Ireland, and Mt. Fuji.

    What I hope other UC suffers will take from this is that you can still live your life to the fullest with UC. You can’t look at anything as a limitation. THIS WILL MAKE YOU STRONGER! And give you the drive to get out and enjoy life. You can’t be afraid of what the future might bring or what if something stops working because it will only limit you. I don’t know how much longer I can stay on remicade but there are always “if’s”. Do what you love no matter what! Also, stay on top of research being done about UC. Being informed will make everything less scary and will allow you have really productive conversations with your doctor.

    And for all those pasta lovers like me, try Dream Fields Pasta! Tastes like the regular pasta except that it has a low glycemic index as it was made for diabetics. It doesn’t affect my colon. My other diet recommendations that have worked for me…stay away from artificial food dyes (especially red and blue), anything with lots of preservatives (I cook fresh daily), I avoid beer and alcohol although do occasionally enjoy it maybe once a month, stay away from nuts, and really just find what works for you.

    Also, a tip for the women (guys can ignore)try birth control. There are new studies that are trying to establish a connection between the hormone changes during your periods and flare ups. Limiting the amount you have can dramatically help your flare ups. I made this switch about a year before I went into remission. I can’t definitively say that’s what made the difference but I do believe it helped. Talk to your OBGYNs.

    Here’s the article: “The menstrual cycle and its effect on inflammatory bowel disease and irritable bowel syndrome: a prevalence study.”

    http://www.ncbi.nlm.nih.gov/pubmed/9772046

    I hope somebody finds something that can help them in this! I wish you all the best health and happiness!

    -Angela

    • Adam
      Adam March 4, 2013 at 4:21 pm #

      Thanks Angela for all the great info, and super cool to hear/see how you’re still rocking it hard with your UC! keep it up!!!

      –Adam

    • Elaine J
      Elaine J October 31, 2015 at 8:44 am #

      quote: “Hi Apple,
      Thanks for sharing your experience, and yes indeed C-diff is something that we all should be aware of. One of the messages I send to everyone who joins the newsletter is about c-diff because often GI doctors don’t mention this to UC’ers when they are diagnosed and as you’ve experienced yourself (me too) we as a UC group of folks are at a higher risk/more prone to coming down with it.”

      You are right there, Adam – I live in the UK and no-one (GP or consultant) has ever mentioned C-Diff to me, but last year when I had a flare and had to do a stool sample, I noticed the test sheet I had to hand in with the sample said ‘C-Diff’ – and I knew what that was, because it was a contributing factor in my mother’s death in 2007 (she had COPD and diverticulitis). If it hadn’t been for your site I would still not know that UC-ers are prone to it, but obviously my GP knew, and probably ordered the test because as it happens at the time I had been on anti-biotics for something unrelated. I will be extremely wary of taking antibiotics in future!

  4. Yvonne March 25, 2013 at 8:04 am #

    Hi Adam,

    Just a quick question…I seem to remember reading a post from you mentioning bifido bacteria in probiotics and that it should be avoided. I have tried to find the post again but haven’t had any luck. There seem to be mixed reviews on this and I’m a little confused about bifido versus bifidus etc. Can you shed any light on this? Thanks so, so much for your time. Have a fantastic week!! Yvonne

    • Adam
      Adam March 26, 2013 at 2:40 pm #

      Hey Yvonne,

      Bifidus is a strain of bacteria that people often avoid, especially in terms of making homemade yogurt, and if you are following the SCD diet. What’s crazy about Bifidus is how it comes in a bunch of different varieties. For example there’s Bifidobacterium Bifidum, and there’s also one called Lactobacillus Bifidus, and even Bifidobacterium Longum.

      Also, like everything, you’re for sure going to see mixed reviews. But again, if your leaning more on the SCD diet side of things, then this is pretty much why you would avoid Bifidus, the SCD’ers of the world feel it can lead to a harmful bacterial overgrowth within the gut.

      best of luck!

      -Adam

  5. Alireza April 26, 2013 at 1:31 am #

    Dear Dr Adam. I really do hope to get an answer from u as soon as possible. I am 49 and 7 months.(Muslim) during Ramadan month I did not eat food for about 5 nights and become very thin with conspitation and a little blood from anal fissure(hemorroeid operation was about 21 years ago)A doctor prescribed some medcine for that problem but after a while I felt my stomach pumps acid and I’m reluctant to eat food( nervous condition affected me too).Andescopy showed multiple erosions and I took some medcines and I looked better after a while .But a couple of weeks after cutting the drugs I noticed my stool alternates to normal or daiherra or sometimes mucus only( stool test showed no Bacteria or blood) I can only eat boiled chicken or red meet an Fish(salmon) in fer sometimes with boiled potatoes and carrots. Another doc said you should prepare for Colonoscopy test but I am too weak to take this test with special syrups and pills like Bisacodils that make my bellies soften with force. Please show a better and easier way and is it dangerous to post pone the test? It’s about 5 months starting the problem. I am really terrified.

    • Adam
      Adam April 28, 2013 at 5:14 am #

      Hi Alireza,
      Please realize, I am NOT a doctor, but rather an ulcerative colitis patient. That said, it is almost always a good idea to move on with a colonoscopy when it is being recommended, especially if you do not know what is currently wrong. Ulcerative colitis for example is almost always diagnosed via colonoscopy or sigmoidoscopy. The prep is no fun, that is for sure, but a necessary evil.

      I wish you the very best no matter what decisions you make moving forward,
      Adam

  6. Candy February 20, 2015 at 9:31 am #

    Dr. Adam
    I am a mother of a 17 yr old boy who was resently diagoned with uc. His first flare was in oct 2014 and he was hospitalized for 2 wks. He had lost almost 40 pds. He was all better and this wk he started with another flare and hasnt been to school. Can you please tell me how we can get the nauseas attacks away. He also has bad gastritis and he hardly can eat with pain. Please help.

    • Adam
      Adam February 21, 2015 at 1:23 am #

      Hi Candy,
      I’m sorry to hear your son is in the middle of UC symptoms. If your son is taking medications to treat his UC, I would consult with your GI doctor about the medications he is taking to find out if nausea is a common side effect. If so, I would hope your GI could advise you on either some alternative medications which may improve or eliminate the nausea. I myself don’t take any medications and treat my UC with dietary changes, and it has been quite successful for over 5 years now. Details are on my diet page: http://www.ihaveuc.com/the-diet

      • Annmarie May 22, 2015 at 11:00 am #

        I make “tea” from brewing slice up ginger root. Let it simmer on the stove for a few minutes. Helps with the inflammation and the nausea. Learned this while working for an integrative cancer doctor. That’s one of the things they did for nauseated chemo patients. Doesn’t taste great, but works like crazy.

  7. lucas March 9, 2015 at 8:55 pm #

    Hello Adam, my name is lucas and i´m from brazil, i was diagnosed with colitis about 6 months back, today I take my med 2 times a day and I live pretty well, the thing is I play soccer and was offered a scholarship from a university in the U.S. but I am affraid of going because I dont know what will happen if I have a flare. I´m already going to college here in Brazil so if I go and loose the scholarship because of the colitis I would have to start college all over again here in Brazil. at this moment I am in a medium form and practice only 3 times a week. do you think I should take this oportunity ? is it possible to be a competetive high level athlete with u.c ? practice every day and have the proper nutrition for that type of activity ?

    • Adam
      Adam March 10, 2015 at 4:26 am #

      Hey Lucas,

      That is a difficult question for me to answer. Yes, there are athletes with UC, so yes of course it is possible. But at the same time, the recovery process from a flare up typically takes longer for UC’ers to get back to their pre-flare physical level when compared to people without UC. I guess my question that I wonder is if you have ever trained hard (100% high level training) since being diagnosed? Also, have you ever noticed your symptoms (maybe even pre-diagnosis) get worse under extreme physical activity?

      • lucas March 11, 2015 at 12:21 am #

        hi adam, answering your question, yes i have trained 100% since being diagnosed, and it did not sim to affect me. the only thing i´m afraid is if i have a bad flair how long it would take me to get back to playing again, because having a scholarship that cant be to long. what i mean is, i did not have a when training at 100% level, so in case o having one while playing at a high level i dont know how long it would take me to get back on a field. every night i sit back and thing what i should do, it would really be sad if i lost this oportunity, i dont thing i would get it again.

  8. Veronica D
    Veronica May 9, 2015 at 6:27 pm #

    Hi Adam, thanks so much for creating this space where all of us UCers can voice our concerns and triumphs. My heart goes out to everyone out there who may be suffering right now, especially the young kids. I guess I’m lucky, didn’t have my first UC symptoms until I was in my mid fifties. As a clinical provider I knew what was happening to me but fear made me avoid the Dr for 4 months. That was 5 years ago and I’m lucky to respond to llialda 4 grams. I did have one hell of a flare last month that led to a minor lower GI bleed and my GI wanted to start me on Uceris. Luckily I was able to get better without that, do not want to become steroid dependent if I can help it. Having a flare is a real quality of life thing, couldn’t even walk my dog cause I had to turn back to go to the bathroom. It helped a lot to read everyone’s stories when I was really sick. Like I said I’m better now. It does seem my symptoms are much worse in the morning. It’s not the men’s wearing off either since I take these in the am and again at bedtime. Anyone else have worse symptoms in the am?

  9. Tim Carrington June 3, 2015 at 2:53 pm #

    Hi Adam

    Just to thank you for putting up the UC Biologics Comparative Study on the website.

    I’ve never had to go down this road in my UC treatment aving made a pretty good recovery after a month in hospital in 2011 (when it got close to bowel removal). I know that Infliximab would now be available to me as a last resort treatment.

    Good thing your website has informs of such a treatment because when it got close to having the op in 2011 no one gave the option of the treatment and I didn’t know it existed.

    Thanks for all the work you do for us UC’ers

    Best wishes

    Tim Carrington

    • Adam
      Adam June 3, 2015 at 2:55 pm #

      Big thanks Tim for your message, and best of luck to you in the future and continued success and recovery:)!!!!

      keep us posted on how things go:)
      take care,
      adam

  10. Darren January 17, 2016 at 11:09 am #

    Hi Adam

    I found your site just a couple of weeks ago, and let me say I love your work. You are giving people with UC an amazing platform to talk and share information and I thankyou for that. Its an amazing thing!

    I was diagnosed with UC 7 years ago and was first put on steroids and asacol tablets then slowly moved onto mercaptopurine 50mg. I was on mercaptopurine for about 5 years until recently just two weeks ago I had to come off them because doctors thought it was effecting my white blood cell count. Around the start of this year I had stay in hospital because of this. Doctors moved me off all medication and my white blood cell count is now back to normal. I have now been off all meds for two weeks and everything was going well until today when I had my worst flare up for a long time.
    I see that you are off all medication now and are doing well and this gives me hope.
    I would like to ask how it was for you when you moved off medication?
    I have been on SCD diet for one week now, although I do still eat white potato’s sometimes because I am very new to this diet so am in need of recipes.
    I am going to give your book a read, and I’m sure you have some cool recipes in there to try :)

    All the best, Darren :)

    • Adam
      Adam January 17, 2016 at 11:24 am #

      Hi Darren,
      Thanks for writing in and letting me know how you’re doing.
      As for your question about moving off medications and how that went, well, great questions. When I started treating my UC with diet changes as I wrote about in my ebooks, I was actually in the middle of a prednisone taper at the time. I had been moving down from a high dose to getting off them and that is when I introduced the massive diet changes. That combination wasn’t by any plan, however I was very near to getting surgery as it was not clear by any means how my symptoms would react once off the prednisone as I’d had major problems previously in the preceding year.

      But, it went well. The slow taper finally ended and then I was on the diet full time and have been for the most part ever since with a few times where I’ve fallen off the wagon and started eating all sorts of things that were known to be problematic…(but heck, we’re all human right) and bread sure tastes good when you haven’t had any for five years as I found out in 2013…but that’s a different story.

      I will say that my doctors were opposed to me not moving forward with a new medication to try (6-MP was what they had thought should be my next move before surgery) but I wasn’t willing to go there as the side effects from the other biologics and the lack of results were just not worth it to me anymore back then. And I’m happy to have moved forward how I did.

      I wish you the best with however you decide to move forward, and if you download my ebooks, I hope you enjoy reading them as well and gain something from them that helps you too.

      Best,
      Adam

  11. Kasey May 8, 2016 at 4:27 pm #

    Hey my name is Kasey..

    So I got diagnosed with Ulcerative Colitis back when I was 11 and I’m 15 now. I struggled for a very very long time. I was on lots of meds you’ve heard all about but nothing worked. So I had my colon removed. I have the j-Pouch now and have had it since Christmas of 2012. Well lately I’ve been getting lots of infections in my small intestine. Mainly because I haven’t been taking care of my body the way I should.. I eat foods I’m not supposed to and struggle with remembering to take my probiotics and vitamins every night. It was a recent doctor appointment that made me realize that I will get worse as I get older. I’m going to get really sick and possibly overweight. I could even get my colostomy bag back and I don’t want that. In all honesty I need help. I’m going to be starting my Junior year of high school next year and I’m super super involved in school. But I can’t be involved in the things I love if I’m not taking care of myself. So basically I am writing this for tips on motivation and no colon diets. If you could help me that would be awesome but if you can’t I would really appreciate it if you could direct me to someone who can… I really appreciate it..

  12. Karen June 25, 2016 at 1:24 pm #

    How were you able to get off medication? I currently on 1 Lialda per day but would like to be able to be medication free. I have been in remission since September

    • Adam
      Adam June 28, 2016 at 10:53 pm #

      Hi Karen,

      I went from a very slow taper of prednisone to starting the SCD diet. So I think the best answer to your question from my perspective was that I transitioned away from a diet that previously was filled with alot of carbohydrates to one with much less. Best to you:)

      Adam

  13. Murph July 16, 2016 at 6:12 am #

    Adam

    I just realized that I have not been getting many updates or emails from the site over the last couple of months. I also note that the individual stories seem to be out of date order in other words I looking a readers questions and comment from 2015 versus current 2016. Articles seem to be posted randomly versus current. It there something wrong with my reader or is thee anything I can do to fix this?

    Murph

    • Adam
      Adam July 17, 2016 at 6:01 am #

      Hi Murph,

      I’m not quite sure, sounds strange. The stories on the homepage are listed for the most part in chronological order. Every once in a while, a particularly important story might be posted on the homepage longer than others.

      As for comments, nothing has changed with the commenting system for 6 years now. There are over 25,000 comments on the site, and for sure some of them are not from the past few months. What might be happening is if you are subsbribed to older stories, you might every once in a while receive a comment to an old story which has a recent comment…maybe that is the case for you.

      As for email updates, there have not been very many that I have written in the past few months (I have been tied up with a very big website project that will be getting announced very very shortly, so if you are still on the newsletter, you will for sure get the update when I have it all drafted properly).

      Thank you for your message, always great to hear from you. I hope I’ve answered some of your questions,
      best,

      Adam

  14. Laura September 12, 2016 at 1:22 pm #

    Hey Adam hope you’re having a great day. I’ve had UC now for 5 months, lost 40 lbs and am in the midst of yet another flare. I’ve only had 1 normal day the entire time. Last week I couldn’t make it from point A to point B without having an accident. Not cheating on anything! Right now just on hard-boiled eggs and bananas with my VSL#3, prednisone 10 mg Lialda and omzeprazole. My flare kicked in when I was tapering off the prednisone.
    After reading what people have said about quitting smoking and having symptoms flareup I decided to check something out on my own. I only smoked for a brief time when I was a teenager and I haven’t smoked since but when I saw a commercial the other day for nicotine patches it gave me pause . I certainly didn’t want to smoke but could this actually help? I found my answer! There have been studies done in the UK that show promise so I’m going to give it a whirl -got my patch on now -14 mg one patch a day. I’ll let you know how it goes, still sticking to my meds right now but trying to pull out of this tale span of a flare that I’m in wish me luck! I’ll be trying it for 6 weeks. If it truly makes a difference, I will probably stay on it.

    Wishing you all the best, this website is a godsend for answers and reassurance thank you so much for all your hard work. Plus your a pretty funny guy. Bless you.

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