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A Whole New World…or Life – Humira, Travel, Colitis

IntrodUCtion:

I enjoy school, and my career as a Computer Tech.

Some more about Andrew:

I love film, I collect films and film memorabilia. I am also a huge Disney Fan and enjoy trips down to Walt Disney World quite often. I also love my car, a 1985 Oldsmobile Toronado.

Symptoms:

Stomach aches, urges to go, occasional blood in stool.

A Whole New World…or Life

Hi, my name is Andrew Blair and I was recently diagnosed with UC.

After experiencing symptoms for multiple weeks, I finally had my mother drive me to the ER, thinking that is was my appendix that was causing all of the pain. When we arrived I was rushed to a room, the nurse even make jokes about me coming to the ER with my appendix and leaving without it (if only I was so lucky.) After long periods of waiting and multiple blood tests and a CT Scan I received my diagnoses of Colitis. My first thought was confusion, and then fear. All I remember wanting was a big bottle of Gatorade and my bed.

A few days later I had a follow-up appointment with my normal doctor. He said that a colonoscopy would give a better look at what exactly was going on inside of me. The colonoscopy was an interesting experience to say the least. The first couple of hours after the colonscopy was some of the worst pains I have ever felt.

The day after the colonscopy I went back to the hospital for a barium test in my small intestine. This test was not fun, but I`ll take the barium test over the prep of a colonscopy any day.

In the days after my test, I was staying at home binge watching movies, and classic T.V. and was living off of Gatorade. I felt terrible half the time and missed my job, and hanging out with friends. I have to hand it to my family for putting up with me during this period. I was grumpy and miserable. I also have to thank friends for coming over and keeping me company, I do not know where I would be without them.

When I finally had my appointment with a gastroenterologist, I was encouraged to try Humira. My mom instantly was filled with questions, and began to worry. After meeting with my Humira Ambassador some of my worries subsided.

Now I am a week away from starting my Humira treatment and I am nervous, but if this leads to my life going back to somewhat normal, I give it a try.

Some of my questions for other people with UC are about travel. I have a trip to Walt Disney World planned for the begining of August.

I was wondering if there are any travel tips that I should know before leaving? Any help would be greatly appreciated.

Medications:

I was currently taking Prednisone and Delzicol. Once I start Humira I will contiune Delzicol.

written by Andrew G

submitted in the colitis venting area




Humira

3 Responses to A Whole New World…or Life – Humira, Travel, Colitis

  1. Adam
    Adam July 10, 2015 at 10:30 am #

    Hey Andrew,

    Thanks for sharing your story!

    I myself have done quite a bit of traveling since getting the UC diagnosis back in Oct 2008, and I’ve got a few tips that might be of help to you.

    #1: Don’t get stuck in the bathroom next to Goofy at Disneyland. That happened to me a few years back and he will be making some sounds that will freak you out, and really disturb the mood of a nice relaxing poop.(serious man)

    #2: If you’re taking medications that need to be refrigerated…make sure you’ll have access to a fridge.(I am not positive, but I thought humira needs to be in the fridge…been a while though..so maybe not..)

    #3: Drink lots of water, especially at Disneyland (or see if you can bring in a bottle or two…Surely they charge an arm and aleg there for that stuff…maybe some fountains)

    #4: Traveling or not, I would highly recommend not to get carried away on alcohol or soft drinks…I think that stuff is the secret devil for too many of our colons. Harder to do when travelling but worth the will power resistance movement

    #5: Hey…you’re on vacation…do something for yourself, take a nice walk in the morning…whatever it may be…a nice bath in the hotel bathtub…just do something that you woudln’t normally do at home.. something that proves you’re still normal..even with UC and you can still enjoy the heck out of yourself.

    I wish you the best, have fun and keep us posted on your journey.

    Adam

  2. Brenda W
    brenda m July 11, 2015 at 3:10 am #

    Hi Andrew, my tip is to take lomotil or immodium. When I travel I don’t drink or eat anything until I am safely near a washroom cause that is when it can all go wrong. All the best to you. peace

  3. dave July 12, 2015 at 5:30 am #

    Hey Andrew

    I recently read this book called “How I cured my ulcerative colitis” by Vanessa Edmund. Thw writing is so and so and the book is a quick read but the advice was solid. At least it seems that way, so far. You should check it out.

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