Ulcerative Colitis Tips


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30 Year Old Male with Colitis and Celiac Disease

Introduction:

I have Ulcerative Colitis and Celiacs, trying the SCD in hopes it will lead to some relief…

My Colitis Story:

Hello, my name is Blake, 30 years old, married, father of a 2 year old boy. I was diagnosed with UC and Celiacs about 10 months ago. I couldn’t believe it when I was diagnosed, thought the doctor was dumb and went to another GI and he came up with the same diagnoses. I then asked my GI to test me for Celiacs because my sister has had Celiacs since she was 2. The test came back positive so I was relieved to know all I had to do was cut gluten out of my diet and be back to normal. i wish it was that easy. After taking prednisone and Asacol, my flare up was gone after a while. I decided I didn’t need asacol anymore and got off of it because i was now eating gluten free and figured I would be okay. About two months later I started seeing blood in my stools again. A couple weeks later I was on the pot more frequently. Now, for about the last month I’ve been going 12-16 times daily, mostly in the mornings. I go probably 12 times the first couple hours I’m awake. I just started the SCD diet about 8 days ago with little comfort from it so far but I am devoted to trying it for longer because I cannot deal with this bloody crap anymore and the book makes sense. I see blood just about every time I go, bright red blood all over the toilet paper, splattering on the toilet and in the water. I get so excited when I don’t see blood, but know that the next visit will probably involve blood. My terds look sometimes grey, sometimes fairly normal, and sometimes like dirt. WTF? Why does it feel like I have to take a 10 pound dump and all that comes out is a gram of excrement. I’ll let you guys know how the SCD diet is working for me on a later date cause right now I’m pretty fed up with it already. I was hoping for quick results, but aren’t we all.

My Colitis Medications:

Prednisone 40mg
Lialda 4 pills a day
Was on Asacol and Prednisone for my first flare

 

Submitted by “Blake be Pooping Blood” In the Colitis Venting Area

 




11 Responses to 30 Year Old Male with Colitis and Celiac Disease

  1. nichole October 7, 2011 at 11:46 am #

    I just started to try the SCD diet. You have been on it for eight days? WOW! Did you move past the intro diet yet? Thats what killing me! how many pattys can one person take? Its only my day 3 and ive only noticed going less at night, but the blood is still there. And the D. Another question, how much food were you eating on the intro diet? should we be loading up on food? im under weight as it is? What is your take on it?

    • Blake October 8, 2011 at 1:38 pm #

      Nicole,
      I didn’t really know about the intro diet when I started SCD, I just was going off the legal list. I’m learning more as I’ve read the book twice now, so I guess you can say I just skipped the intro diet. I have lost about 15 lbs since I’ve been on it (I think its been a little over 2 weeks now) and I’m not happy about that since I’ve spent years in the gym trying to bulk up and get stronger. I feel like I’m deteriorating on this diet, but if it helps me heal, that’s what I need to do because I want to keep my colon in tact. I feel like I have been eating a lot more than what I used to eat on a regular diet, but since it’s all low calorie healthy food, it is hard to keep your weight at a level you want it to be. When I eventually can start adding food in, I believe the first food I will try will be potatoes because that’s a good way to pack back on good weight. I don’t think I can give you any sound medical advice on how much to eat, but I would just say listen to your body and eat when your hungry. If you’re anything like me, you’re probably always hungry from this diet. I hope you see a difference, and if you do, let me know. I have just noticed in the last few days, I have went from pooping about 15 times on average to about 5 times in the last few days. I have to note that I can’t really give credit to the diet yet because I switched from Lialda and Prednisone to Asacol and Prednisone, plus an enema at night. The very next day I switched drugs, I noticed the decrease in bowel movements, so I can’t really say it was the diet. I’ve read a lot of people who tell me it takes sometimes 3-6 months, so I’m willing to give it some time because I want my colon to stick around a while, although sometimes I think it might be easier to just get the damn thing cut out. I really don’t mean that, just venting. Anyway, good luck and thanks for reading. Cheers!

      Blake

  2. Peter NZ October 7, 2011 at 6:43 pm #

    If it was me I’d take the meds.

    • Blake October 8, 2011 at 1:40 pm #

      I’m on meds, prednisone and asacol now, plus an enema I have to squirt up my brown star at night. I switched the last few days and I have noticed a huge decrease in bowel movements, from about 15 dumps to about 5 the last 3 days. My hope is to heal, so I think the diet is the only way to get those results, or get my colon removed, but I don’t want to go that route. I’ll give this a honest try first. Cheers!

  3. Hopskotch October 7, 2011 at 7:19 pm #

    I agree with Peter. Celiac aside, sounds like your UC is definitely flaring. I’d call the doc and get that under control with meds as soon as possible. If you’re bleeding that much, I wouldn’t leave it to diet alone. Once you’re under control, then you can gradually try weening off meds with the new diet if you want to. Good luck and hope you’re better soon!

    • Blake October 8, 2011 at 1:41 pm #

      Thanks hopskotch!

  4. moxie October 7, 2011 at 11:30 pm #

    It took about three months on SCD before I started seeing any significant improvement and then another 6 months to get completely in remission (knocking on wood as I type this). After the initial three months though the symptoms were very mild. I was bull- headed enough to do this without any medication.

    If I ever flare again, I will take some sort of medication (as mild as possible) and continue with the SCD.

    • Blake October 8, 2011 at 1:44 pm #

      You sound like a super human! I had to get on drugs, trying to work for a living and having a full time job as a poop specialist is too tough. I would agree with you and say if you ever get a flare again, get some drugs to help, it should cut your healing time I would think. Have you started to add any foods yet moxie? Like potatoes or rice? Just wondering, I can’t wait till I can be in that position. Cheers!

      Blake

  5. William October 7, 2011 at 11:59 pm #

    I have not tried the SCD but did try a diet of applesauce, bananas, oatmeal, squash, carrots, salmon, brown rice, chicken, etc. and NO red meat, coffee, dairy, alcohol, gluten, tomatoes, juice, etc. and it helped me get over a really bad flare with mesalamine only. Just a thought.

  6. Blake October 8, 2011 at 1:46 pm #

    Whatever works is what I say. Glad you found that worked for you!

  7. moxie October 8, 2011 at 6:11 pm #

    Blake, I have not added anything outside SCD legal foods yet. I really want to make sure I’m really healed before doing so. I have only just added beans (like lentils) and nuts (but going very slowly with them). I was on SCD before for about a year and then started adding more and more foods, but then I flared after a year or so. In retrospect, I think I went off the diet too quickly.

    This time I will definitely stay on the diet longer (at least 2 years) and the first foods I will add will be potatoes and then rice. Frankly, I don’t miss these foods as I was never a big rice or potato fan, but once in a while it would be nice when eating out in a restaurant, etc. What I do miss is bread, chips and sweets! But at least with almond flour and honey you can make some wonderful sweet stuff. I will probably never go back to bread again, unfortunately.

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