Ulcerative Colitis Tips


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15 Years Old – Living With Ulcerative Colitis

My name is Madi, I am 15 years old, and I’m living with UC.

I was first diagnosed when I was just 10 years old.

I’ll be starting my 6th year living with UC in January. When I first started noticing symptoms, I was on vacation up in Canada and out of nowhere I had to run to the restroom. I thought it was just something I had eaten and it was just a one time thing. But 5-10 minutes later I had to run to the restroom again. I had a rough night that following night, so my dad took me to a doctor. Of course, they said it was nothing and to just go home and take it easy. I stayed in Canada for 2 more weeks until my body couldn’t bare it anymore. I had to come back home to the U.S. I visited many doctors and they all said the same thing, that I was fine.

But I knew I wasn’t fine.

I finally went to the children’s hospital and stayed there for 5 days. On the fifth day in the hospital, after having a colonoscopy, the doctors told me I had ulcerative colitis, and that there was no cure. The doctor put me on prednisone for months and it wasn’t helping me. My face got puffy and I wasn’t myself. The kids at school called me chubby cheeks….yeah it didn’t feel so great. My dad came to his senses and we ditched the doctor that had me on prednisone for so long. I met my new doctor, hoping he had other plans. I slowly came off of prednisone and he put me on Lialda. To this day I take two Lialda pills every morning. I guess they keep me stable. Every now and then I do get flare ups, which nobody likes. But I receive small amounts of prednisone and it usually knocks it out pretty quick. Just recently, I had a moderate flare up that kept me out of school for 9 days. On the third day of missing school, I decided I should try to go back because I hate missing work and having to make it up later. So of course I tried going back and the terrible incident of not making it to the bathroom happened. That is probably the most embarrassing thing that can happen, and I’m sure it’s happened to most of us living with UC.

My dad came to pick me up, he brought a change of pants and I left school.

That’s the second time it’s happened in school, luckily, I don’t think anyone noticed what happened. I am better now and slowly coming off of the prednisone from my flare up. I still frequent the restroom, but not as much. If anyone wants to know more about my life, leave me a comment below.

written by Madi

submitted in the Colitis Venting Area




lialda

5 Responses to 15 Years Old – Living With Ulcerative Colitis

  1. Lisa_GTP December 27, 2011 at 8:56 pm #

    Dear Madi,
    It is going to be rough, but you have to keep yout chin up and look at the brighter side of things.
    Check out my story: http://www.ihaveuc.com/my-story-of-hope-and-ulcerative-colitis/

    —I pooped my pants when I was in school, more than once. One time, when I first started having symptoms, I was in weight training, I figured it was just gas or something and I went to do squats, well… As soon as I went down- had an opps in my workout shorts. I waddled to the locker room and changed then drove home. I was completely embarassed! Another time during a bad flare, I was on a date with my now fiance’, and someone was in the restroom, (of course by then I learned to bring an extra pair of shorts with me, lol) And I went. I cried. But now, I laugh as I look back. We just need to be prepared is all! Its not a curse, its just an obstacle in life we have been set to overcome!

    You are not alone!

  2. uma December 28, 2011 at 6:45 am #

    You are so young and brave. I am sure that in a few years the cure will be on its way. Hang on. I know this since my UC is 22yrs old. And there are so many better medicines and awareness now than before. Initially they told me that it was a psychosomatic disease now they know that it is an autoimmune disease. So there is hope. Hang on.

  3. trent December 29, 2011 at 8:20 pm #

    hey maddie when i was 18 i was diagnosed with uc and after not seeing anyone for months due to a bad flare up i started felling better so i went skateboarding with my friends. In the middle of skating i dropped a load in my pants so i got in my car and drove home. When you gotta go you gotta go. To be honest i was laughing hysterically as i drove home because i thought to myself did i really just S$#t my pants, and from there on i knew that life was gonna bring me these ridiculous embarrassing incidents and all you can do is laugh and look at it with a positive attitude cus life goes on.

  4. Sarah December 29, 2012 at 6:18 am #

    Im also 15 and have UC I only found out about 4-5 months ago, and have been in hospital loads of times. I was on 33 tablets a day now I’m only on 19- 22 a day which is still alot and now I’m gonna start a new medicine but if that doesn’t work I’m gonna have to have surgery.
    Buti was just wondering do you sometimes feel really down and depressed? Cuz I’ve been feeling like this for a while I just wake up on pain and feel sad like no one understands me. And that’s how I found here.

  5. Andy Masters May 15, 2013 at 8:45 am #

    I just turned 15 and i have UC i am a freshman in high school i found out in 7th grade. I also had doctors from the ER tell me i was fine and gave me a Gatorade and sent me home but the next day i started bleeding and so i went to a pediatric doctor and the told me to get admitted to the hospital right away. i spent 8 days in there 6 of which i was on quarantine because they thought i had some new stomach virus but they then did a colonoscopy on me and told me i have UC and since then i have only had about 3 mild flare ups but right now im having a moderate one im bleeding pretty heavily and i have 4 days to stop before i get admitted again, I have learned to live with it and have tried to make the best out of it. i have been on prednisone about 8 times not including now and i hate it because it makes me get pretty chubby but i then just keep working out and get back to the way i was. But i have been depressed the passed 8 months, but my girlfriend of 10 months is really supporting to me and is always there for me, and i am there for her because she has CF (cystic fibrosis) :( its nice to just finially get to share how i feel and see how others with UC are doing

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